Long time

Well it's been a while since I've updated on James sorry. He had plastic surgery to put a gold weight in his eye which went well. His eye has healed nicely. Also he started growth hormones a couple weeks ago. I learned how to give that injection to him. He is due for his next set of scan next month. School is going really well. He's in a special needs preschool right now but his teacher said she thinks he will do just fine next year in a regular kindergarten class. He's still not potty trained that's something we are working on but aren't sure if he has control still. He loved the holidays and thankfully hasn't gotten any bugs that have been going around. Everything is going good. He's doing great and we are so proud of him and how far he's come.

Still healing

James had his eye surgery and everything went good. His eye is a little bit straighter! He is healing nicely and his doctor is very happy with how it looks. He also had a test done to see if his cortisol levels were ok and it turns out he has adrenal insufficiency so was put on medication. For those that don't know what that is, your adrenals are connected to your kidneys and they send cortisol to your pituitary glands when your sick or stressed to help your body but his isn't doing that. It's a lot more serious than I thought. His doctor told us he could go into shock if he doesn't take his medicine. He will be getting all his teeth fixed in a couple weeks. We also heard back from his oncology team and they got his scans from AZ and the "thickening" they thought that was abnormal isn't. It's been there for a while and hasn't grown or anything. So now as long as his oncologist is ok with it they want to put him on growth hormones. So we will see. He's still loving school and started PT again. He misses home(Arizona) a lot. We are going to try and visit soon but we will see.

Bad teeth

James got his glasses last week and he looks so cute. It's funny to see him now without glasses. He has his eye surgery next week. We saw his ophthalmologist and he said James' eye sight is improving but it will take some time for the right eye to adjust. We went and saw a dentist for James because he said his tooth hurt. Well he had a cleaning and check up yesterday. He has very bad teeth. He will have to have caps on all his teeth except the top and bottom front four. He will end up having to go the hospital and put under anesthesia to get all the work done. I feel like every time we get one thing figured out another thing turns up. We got the results from his stimulation test. James has a hormone deficiency and needs to be on growth hormones. The catch is the MRI he just had showed thickening and we don't know yet if that is normal or not so he can't take it. If he has cancer cells the growth hormones could possibly make them grow faster so we have to make absolutely sure he has none. Other than that he is doing well in school and loves playing at home. Hopefully his surgery goes well on Monday and his eye gets straightened out a bit.

Glasses

James has had a busy week. On Saturday he did his stimulation test for hormone growth. It took about 6 hours total. He did a really good job. We got the results back yesterday and he does have a hormone growth deficiency. So most likely he will be put on growth hormones to help him. We meet his doctor in a couple weeks to go over it. Yesterday he went to his new ophthalmologist(whom I love) he's a great doctor. I like him  much better than his old one. They did lots of checking on his eyes and said he needs glasses. His right eye was a -4.50, which is pretty bad. His left eye just has a stigmatism. We picked out some cool glasses.  He is also scheduled for surgery in three weeks to try and straighten it out. We were also referred to a plastic surgeon and saw him today. He wants to do  surgery a month after the eye straightening one. They will put a weight in his eyelid to help close it. We did confirm with radiology and they said it won't affect his MRI scans at all. So hopefully we can fix his eye so that he can see well and can close it now. I hate putting him through more surgery but eyes are pretty important. He is still doing school and loves it. He loves riding his bus and comes home and tells me all the fun things he did. So grateful for my sweet James!

NED

James had an MRI and the results were clear. They said that there was a spot of thickening on his brain that they didn't know if it was already there from last scan or if it was new. So they have to get his MRI scans from AZ. We met his new oncologist and she was very nice. She actually knew one of James' old doctors at PCH. He had a hearing test and it came back to no change which is good. He also had a echocardiogram and that was normal as well. He has he hormone growth test in two weeks. He's doing really well. He started school today and was so happy and excited. He loved it.

Growing?

James went to see an endocrinologist a couple weeks ago and they sent us to do some blood work and get a hand X-ray. We finally got the results back and his blood work showed his thyroid is working normal but his X-ray shows his bone are the age of a three and a half year old so he has some growing problems. They want his to do a 5 hour test in a couple weeks where they give him different medications and see how his pituitary gland does with them. Once he's finished that they will put him on a growth hormone to help him grow. He has an MRI next Friday and then he has a bunch of other tests a week from Monday. Since he's one year post radiation he has to have a bunch of different things done. He fell down some stairs the other day and scraped up his face really bad. He doesn't do well with stairs because his balance isn't very good still. He starts school in a week and is so excited! He's so excited to ride a school bus. Other than that he is doing great. He is having fun playing and being our sweet boy.

New doctors

We have been living in Utah for almost two weeks. Trying to get new doctors for James is quite difficult. His new oncology finally called me back and they have a bunch of stuff they need James to do. He has to get an MRI, spinal tap, and an echo. He sees the endocrinologist on Friday to see why he's not growing. Most likely he will have to take growth hormones. The only doctor we are having trouble with is his old ophthalmologist. The one in Mesa just won't call me back so I can get records to his new doctor. It's extremely frustrating! Other than that he's doing really good. He has fun and likes going to the park close to the house. We are trying to get things set up for school also and hopefully it all works out!