Friday, September 18, 2015

Glasses

James has had a busy week. On Saturday he did his stimulation test for hormone growth. It took about 6 hours total. He did a really good job. We got the results back yesterday and he does have a hormone growth deficiency. So most likely he will be put on growth hormones to help him. We meet his doctor in a couple weeks to go over it. Yesterday he went to his new ophthalmologist(whom I love) he's a great doctor. I like him  much better than his old one. They did lots of checking on his eyes and said he needs glasses. His right eye was a -4.50, which is pretty bad. His left eye just has a stigmatism. We picked out some cool glasses.  He is also scheduled for surgery in three weeks to try and straighten it out. We were also referred to a plastic surgeon and saw him today. He wants to do  surgery a month after the eye straightening one. They will put a weight in his eyelid to help close it. We did confirm with radiology and they said it won't affect his MRI scans at all. So hopefully we can fix his eye so that he can see well and can close it now. I hate putting him through more surgery but eyes are pretty important. He is still doing school and loves it. He loves riding his bus and comes home and tells me all the fun things he did. So grateful for my sweet James!

Wednesday, September 2, 2015

NED

James had an MRI and the results were clear. They said that there was a spot of thickening on his brain that they didn't know if it was already there from last scan or if it was new. So they have to get his MRI scans from AZ. We met his new oncologist and she was very nice. She actually knew one of James' old doctors at PCH. He had a hearing test and it came back to no change which is good. He also had a echocardiogram and that was normal as well. He has he hormone growth test in two weeks. He's doing really well. He started school today and was so happy and excited. He loved it.