Ear problems

James went to have a hearing test on Thursday. He did one test and it came back abnormal. The audiologist looked in his ears and said he had fluid in both ears and that he couldn't continue the hearing test till he saw his pediatrician. We took him to see his doctor later and she said that he has an infection in both ears and his left ear drum has burst. Poor boy! He has a high tolerance for pain and never says when he hurts. So they put him on some antibiotics and special drops for the left ear. She didn't mention anything about putting tubes in. His hearing is pretty bad and his hearing aids don't help at all. Hopefully he can feel better soon. Good news though he's gained 5 pounds since September. his leg is slowly getting better. He sees his orthopedic surgeon in a week to check and see where he's at. He's very excited about Christmas and is enjoying spending time with family. Merry Christmas!

Gaining weight

James went to clinic yesterday, everything looks good! Doctors are very pleased with how everything is going. He is scheduled for his next MRI at the end of January. If everything looks good then James will get his port out in February. James weighs a nice 37.5 pounds! This time last year he barely weighed 30 pounds maybe. It's nice to see some weight on him, it makes me so happy! He's eating really well. His hair is still coming in nicely. It is very thin and fine but hopefully over time it will go back to semi-normal. He loves playing with his sister and helping his parents with anything he can. He had his last pt of the year yesterday. He will start again in January. Hopefully by then his leg will be a little better and he won't be so scared to walk on it. James loves going to speech! It's sometimes challenging for him since half his mouth doesn't move but he tried really hard. Other than that everything is still going well! He has a hearing test next week just to check everything. Thank you everyone for your love, support, and prayers. We are very grateful!

Cast off

Yesterday James had many visits to different doctors. One of them was his orthopedic surgeon. They took his cast off and took some X-rays. His leg is healing nicely, not 100% better but it's getting there. The bone is still slightly broken. They were going to put him in a cast for two more weeks but after finding out he can't run and just learned to walk again they said nevermind. He's just supposed to be very careful and take it easy for a few weeks. They said it could take up to 4 months before its back to normal. James is very happy to have it off but pretty nervous to even stand on it.
James also saw his eye specialist yesterday. His right eye is getting better. The doctor said he doesn't think he will need glasses. He has to wear an eye patch for 2 hours a day on the good eye and ointment in the right every night. He is finally used to his "ears" or hearing aids. He even asks us to put them in. He has another hearing test in two weeks. His therapies are going pretty good. He's getting more frustrated lately with OT. He just gets into the mind set that he can't do things. Poor guy! I try and remind him that he can do it and it's ok if he needs help. Other than doctors and therapists he loves playing with his sister and brother. He loves going to the aquarium and seeing all the fish. He is very excited for Santa to bring him snow. He has his next MRI in a month. I pray everyday that his cancer will remain gone!