Tuesday, August 26, 2014

Staying home is boring

James has been doing really well. Today he had PT and went to clinic. He is getting really good at walking. One of the goals is for him to not loose his balance and not fall, all week. He already failed, haha. He just starts going faster than his body is ready for and he falls. All his therapies are in the morning now which is super nice because he does way better and is really ready for nap after. He's getting better with his OT also. He has his eye appointment next week to see if there is anything we can do to fix it. He had a hearing test last week but fell asleep during it so we get to try again. He is still bald and it doesn't look like hair is coming in any time soon. He likes having a schedule and having things to do everyday. When he doesn't have any appointments he isn't really sure what to do at home. Staying home all day is boring for him. He is still playing with Zoey and having fun with his new baby brother. He asks everyday when does he get to go to Cars Land. He is very excited to go. We love having him home and we love knowing he doesn't have any more treatment to do. Hopefully it will stay that way.

Tuesday, August 19, 2014

Busy boy

I didn't realize it had been so long since I last wrote. James is doing well. He went to clinic today and saw Dr. Li for the first time. Dr. Li couldn't believe that James can pretty much walk now. James' blood counts are all good. They are now working on building his weight. James only weighs 32 lbs and is in the 21st percentile for weight. I have to chart exactly what he eats for a week so that the nutritionist can look and see just how much he eats orally. Also we are supposed to make him wear his eye patch more often. He hates the eye patch so we will see how that goes. He started all his therapies this week. We go to the hospital 4 times a week with everything he has going on.  Tomorrow he has an appointment to check his hearing. I hope they don't say it has gotten any worse. Then in two weeks he goes in for his eye. He really enjoys being home and playing with Zoey. He tells me all the time that he loves being home. For now he will just have clinic once a week and have MRI scans every three months. We are going to Disneyland in a few weeks for his make a wish trip. He is so excited! We hope and pray the cancer will continue to stay gone and we can try to get back to normal.

Wednesday, August 6, 2014

Free at last, free at last!,

James had his final day of treatment this morning. We are so proud and happy for him. After he woke up and relaxed he got to pick out a few new toys. Sam called and facetimed with me so I could then see James bang the gong. It's made me so happy for him. Then they went to go see Dr. Kahtua and he said that he looks great! His skin looks so much better! Then they told him that he was clear to go home! He is so excited to come home. They are hanging out with Uncle Ben and Aunt Britt tonight and then waking up super early tomorrow and driving all day. We are so so proud of James. This was the very last thing he has to do treatment wise and it has been such a long road for him. Now he just has MRI scans every 3 months and weekly visits with Dr. Li. I can't wait to have my sweet little boy home!