January Scans

This month has been pretty good for James despite starting it off in the hospital. He's started physical therapy again finally and man does she work him. After a 5 week break she makes him work as hard as he can. It was the first time where in the middle he said he was done and tired. Speech is going well he's improving a lot. He still needs some help but that's ok. OT is also going well. His therapist has had to set all new goals and make it a bit more challenging. James is walking like crazy and climbing up on things. We have started to try and teach James how to take his clothes off. Putting them on is very hard but taking them off is getting easier and next week he starts potty training again. He had his MRI last Friday and we found out today that he's NED(no evidence of disease). We are super happy and grateful that Heavenly Father has blessed our family. Next week we go to clinic and talk about surgery to remove his port. Tomorrow he goes back to his audiologist for a hearing test and to turn his hearing aids up. It's never really a slow dull week around here. If James doesn't have tons of appointments then someone else does. Thank you for all the love and support we are very grateful! We love our sweet boy!

Don't miss the hospital

James had been doing really well then we went to Utah and some family brought the flu with them and we all got it. James was the last one to get it and his was so bad they put him in the hospital. He had a fever and was just not doing too well. His blood counts dropped also trying to fight off the sickness he had to have a blood transfusion. They just kept him in the hospital over night. He's feeling a little better. He goes into clinic on Tuesday and hopefully his blood counts are ok. He also saw his orthopedic surgeon this week. His leg looks good hopefully he will be walking on it more.