Over due

Sorry it has been months since I've written about James. He's doing alright. He had an MRI and it showed some thickness that keeps growing. They said it's not a tumor but they don't know what it is. So they sent the scans to his radiation oncologist in Houston but I found out they sent it to the wrong Doctor so we are still waiting. Hopefully we find out soon because I've been waiting two months to find out. He's still growing really well. He's been on a break from PT for a bit but we will probably start that up again. He starts kindergarten in a few weeks and is so excited. He thrives on a schedule and isn't really sure what to do without one. He's on thyroid medication now also which his doctor said isn't a surprise. Other than that he's doing well and we've enjoyed our summer!

Progress

James has been doing really well. He went and saw the endocrinologist a couple weeks ago and the doctor told us that he has grown 3/4 of an inch. Which is great and means the growth hormones are working. He upped his dosage a little bit. The only bad news was James' recent blood work now shows he has hypothyroidism so he takes medication for that now also. The doctor said it's pretty common for kids like James to have all of these different issues because they are all controlled by his pituitary gland which was damaged from treatment. It was nice though we knew he grew a little because all of a sudden his shoes were too small. He goes in to see his ophthalmologist next week and also his pediatrician for check ups. School is going great. We had an IEP meeting with everyone who works with James. He will not need to be in a special need kindergarten class next year because he is doing great. Obviously he does have some things still he needs help with that OT and PT are working on with him. He loves going to school and being with his friends. All his teachers just kept telling me how amazing and sweet James is(I already knew that)! He stopped doing physical therapy at the clinic just for a couple months and will restart in July. We got a letter in the mail yesterday saying it's time for us to schedule his next MRI. I feel like they come so fast. It always makes me anxious and worried but hopefully things will continue to be good for our sweet boy. He is just doing so well and it makes his whole family happy. We will try to keep you posted on results from all the different doctors.

MRI

Well it's that time again. A couple of weeks ago James had his MRI checkup. To say it didn't go well is putting it lightly. Here in Utah they don't do general anesthesia on children for MRI's unless they absolutely have to. Well last time he had an MRI done here they barely got everything they needed because they just gave him some medication to help "relax" him. I told them not to do that again because he screamed and cried through the whole beginning of the MRI. Did they listen? Nope! They did it again this time and surprise surprise we couldn't get James to relax and then they barely got what they needed from his brain but no spine. I was so mad! It's no fun to watch your child sit there and scream and cry for his mommy. And then the nurse tell me they can't get all his scans. So today we went and had them finished and they put him under general anesthesia. We haven't heard back yet what the results of his spine images are but we know his brain is all clear and no signs of cancer. They said most likely the spine is clear as well so that is good news! James is doing really well in school and enjoys it so much. He's still doing PT weekly and some days are harder than others for him. She works his balance problems a lot and when she tries something new and challenges him he struggles and cries. Other than that everything is the same and going well!