Still hanging in there

James has been doing pretty well. He is starting to walk a little on his leg which is good. He crawls everywhere mostly. He started PT again which is a little challenging. Nothing too exciting or new. His hair is coming in nicely. He says he wants more hair than his Papa, haha so hopefully we can make that happen. He is very excited for Christmas. This is his favorite time of year and last year he spent it in the hospital, so we have to make up for it. He asked for The King(from cars) and snow for Christmas. I already got him the car but as far as the snow goes, well lets just say for the first time I will probably pray for snow. Good thing we are going to Utah this year so the chances are pretty good. He is still packing on the pounds, his pants are finally getting a little snug. It's nice to buy him new clothes, especially since he has been in the same size for over a year. He goes in a week and a half back to the eye and orthopedic doctors. His eye still doesn't close all the way so they might need to do another surgery. He is doing great, I'm so thankful for this sweet boy and all the time I get with him.

Couch potato

James went to his orthopedic doctor and finally got his cast. They said he has to wear it for four weeks and then we will go back and see how it's doing. It might take longer than normal to heal because his bones are weak from the chemotherapy. He's allowed to walk on it as much as he's able. James though doesn't think he can or is scared, so he sits on the couch most of the day. I have him try and walk and crawl a few times a day. He got his hearing aids. He didn't like them the first couple days but now he thinks they are ok. He calls them his ears lol. He's still doing his therapies and started speech again. Yesterday at clinic his doctor was very happy that he's gaining so much weight. He looks like a completely different person than the one at this time last year. We talked about his face. The right cheek and part of the mouth doesn't move. I wanted to know if there was anything we could do to fix it but they said no. The nerves are most likely permanently damaged and plastic surgery wouldn't help at all. I hate hearing those kinds of things. It makes me frustrated and sad that he will have all these permanent things and there is nothing I can do. I know he's a little kid and they don't care how they look so I guess I shouldn't worry about it. He goes in to get the volume turned up on his hearing aids tomorrow hopefully it will go well. I love my sweet boy and am so glad I still get time with him.