More surgery

James had an eye appointment this week. His vision in the right eye is getting better! But his eye won't close all the way so they want to put a little gold weight in his eyelid to help keep it closed. That won't happen till April cause the surgeon is very busy. We also went to his ent and immediately they said he needs tubes in both ears. He has tons of fluid and snot in his ears. His doctor said hopefully it will make him hear a little better. After this hopefully he will be done with any procedures. Other than that he's doing well. Getting stronger and talking better.

Port Removed

Monday afternoon I got a call saying they had an opening for James on Thursday to remove his port. It was all really fast we were expecting to wait a few weeks. Tuesday morning he went in and had his blood taken to check and make sure he was ok to have surgery. then Thursday we headed over to the hospital at 7am. It was a little bit of a crazy week trying to rearrange everything. His surgery went great. It took about 45 minutes and then he had to stay in the recovery room for half an hour. I tried to explain to him what the doctor was going to do. After surgery he kept asking where his port was. I think he was hoping to see it. It was the first time that he's come out of anesthesia calm and relaxed. He's usually grumpy and crying. He's doing really well and says he doesn't hurt at all. Everyone keeps asking if I'm excited the port is out and I am but I'm also not. I'm just scared that it will have to go back in. I just do t want him to have to have another surgery. This was his 8th surgery in 18 months. We took him off his appetite stimulant and he started to not want to eat and lost about 2 pounds so they put him back on. Hopefully he can learn to like to eat on his own. He's doing very well in all his therapy sessions. We've started having "learning time" at home to keep him up to date and busy. Other than that he has another eye appointment next week and hopefully it goes well!

Surgery

James has been doing great! He is getting stronger everyday. Last week he had another hearing test done. No changes his hearing loss is still the same as last time. His hearing aids help him a lot, especially in speech therapy. He is improving so much! He has had some fluid behind his right ear drum so he has to see an ENT or ear specialist. Hopefully they can figure out what's up and it will be a quick fix. He went into clinic today and everything looks great. He will be having surgery to remove his port in a few weeks. We don't know yet if he will have to stay in the hospital over night or not. When they put it in he was able to go home right after. We have been trying to re-potty train James this week. He does ok but we aren't sure if he can feel anything down there. His doctor said it is possible for him to lose sensation and hopefully over time it will come back. He just needs more time to heal from all the treatment. HIs hair is finally growing back slightly on the back of his head and around his ears. I can't believe it's taken 6 months to start growing again. James is such a sweet and loving boy! He's eager to help me with anything and loved playing with both his siblings. I very rarely have to get on to him. Hopefully he continues on this path and we never have to go back!