Clinic

James went to clinic this week. He is doing pretty good. His blood counts are all good. Hemoglobin is a little low but hopefully it will get better. He will be getting his next MRI in about 3 weeks. I feel like he just had scans done. He has been tilting his head to the left more so lately than normal. His doctor is a little concerned. He doesn't know if he's compensating for vision or balance or if something is going on inside his head. Hopefully the scans will be clear! James is doing well in pt. They make him work hard and are trying to help him be more independent. He's lost a little weight, which isn't surprising because I've noticed his appetite has slowed down. If he loses anymore weight they will put him back on his medicine. We are going to California on a fun family trip next week and the kids are so excited! We are going to give potty training another go once we get back. I pray that he can learn this and his body will be able to do it. He wants to be like his little sister and wear "big kid" underwear. I love my sweet boy and I just want life to be a little easier on him. He is the sweetest boy and loves everyone dearly!

Doing well!

Yesterday James had tubes put in his ears. He's doing great! He woke up happy and relaxed. He was back to his normal self as soon as we got home. He's doing really well in his therapies. He had speech this morning and he has met almost all his goals already. The only thing he still has trouble with is saying the "s" sound when it's at the beginning of a word. His therapist switched him to twice a month now instead of every week. If he keeps doing well then he will probably go to once a month. He goes into clinic next week and hopefully everything looks good. We've been talking about getting him in pre school in the fall but I'm afraid he won't be able to since he is still in diapers. He has absolutely no desire to be in underwear. He still doesn't have control over his bowel movements. Hopefully in the next month or so we can start trying to potty train him again. Other than that he's a very happy boy!