NED

James has been doing really well. He had an MRI on Monday and we finally got the results today. He is still NED(no evidence of disease)! We are so excited! The day before his MRI and the days after are so stressful and worry some. I'm so grateful Heavenly Father has granted us more time with this sweet boy! James also met with an eye surgeon to put the weight in his eye since it doesn't close. Well after we had his MRI we talked to the oncologist about it and he said right now we should wait to do that. Since he will be having scans every 3 months for a long time it's best to wait. The weight would interfere with his scans so we wouldn't get a great picture. He also had a hearing test today and his hearing is the same it was last time which is good. He'll have to get new ear molds as he grows but other than that he's doing good. He's still doing therapy and it's going really well. I'm so happy he's improving and growing strong. Hopefully everything continues down this path and he remains cancer free.

hanging in there

James still doing good. He went and saw the ent and his ears are nice and clear. He also went to clinic and all his counts are good. They are still concerned about him tilting his head. They said its a sign that something isn't right inside. James has been doing it though for a while so I think he's just trying to compensate for his vision or balance. He's getting stronger and enjoys being able to do things. He wants a bike for his birthday so in pt they are trying to get him strong enough to push one. He sees the eye plastic surgeon next week to talk about options for his eyelid. His hair still isn't comp back. They said it can take 2 years sometimes before it all comes back. He just looks like he has a funky Mohawk. Other than that he's doing really well. He should have another MRI sometime this month. Hopefully it's good news!