6 rounds left

James is doing pretty good. The fatigue has finally caught up with him. He gets very tired very quickly and has no trouble taking a nap and going to bed at a normal time. His head is still pretty red but it's started to peel. His ears are also really red and they actually hurt him a little. His doctor today said that, that is where they are pointing the beams right now so his ears are going to be a little more sensitive. His spine has some redness also but it doesn't seem to bother him. Other than that he is still doing everything else normally. Still plays in the play room a few times a day and is getting better and better each day walking. I'm excited for him to go back to PT and have his therapist see how much he's improved. He misses his mom and Zoey but is having a fun time with his dad. I think it's helped the boys get a little closer being together. They are thinking he might have to stay a couple extra days after his last treatment just to make sure his counts are ok but Sam is trying to convince them to just let them leave the next morning. I'm pretty much due any day now so Sam would like to try and get home as quickly as possible. Hopefully they make it, if not James will have a new sibling waiting to meet him when he gets home.

19 out of 30

James is still doing well. His "sunburn" has gotten a little worse. His skin is very fragile. He's fallen a few times and the skin scraps off really easy. So now his poor little head has two big scratches. He's still walking and playing and having a good time. He misses his mom and Zoey a lot. We FaceTime everyday. He likes for me to show him all his toys here at home. He isn't eating a ton but we aren't too worried right now. We figured we would start over with the eating when he gets home. The doctors say everything is looking good and going well. Only two more weeks till he is done and gets to come home. I think the boys are having a good time together. It's good for them to be together without mom even though none of us like it much. 11 more treatments till he is finished yay!!

14 out of 30

James has been doing pretty well. He is halfway done with treatment which is exciting. We met with Dr. Grosshans today, he thinks James is doing really well. He has a slight sunburn on his head and now starting to go down his spine. We were told to put aquafor cream on it 3 times a day. He does have some redness by his right eye that they are concerned about. He had us draw with a pen around it so if it spreads they think it's possibly an infection and will need to put him on antibiotics. He has also lost a little weight so they increased his feed to 80mls which will hopefully chunk him up a bit. He doesn't have much of an appetite but that could be because the play room is right by where we eat so he just wants to go play. I'll be glad to get him home and try to get him on a normal schedule. He is pretty much walking everywhere around the housing area. Sometimes he will get tired and ask to be carried. He is still playing and having fun. Tomorrow Zoey and I go back home and I hope he will be ok. Having his little sister here has definitely helped with a lot and he always has someone to play with. It will be good for both of us I hope. I haven't been away from him for more than a few hours since the day he went in the hospital last year so I'm not really sure what to do with my three weeks with just Zoey and I. I will be so glad when the boys come home and we are done with hospitals and treatment for a while. I just pray we never have to do any of this again.

10 out of 30

We are almost half way done woohoo! James is doing well, he started to loose his hair today. We knew it would probably happen but I was kinda hoping it wouldn't. He has a hard time sleeping, which they said is normal. It takes him about 2 hours to fall asleep at night. They only nap he gets is when he's out for his radiation. Hopefully his sleeping pattern will return when he's all done. Other than that he doesn't have any side effects. He has to meet with the nutritionist next week to keep his weight up. We did meet with his oncology doctor today. James' hemaglobin was a little low so they will wait and check it again on Friday and if it's still low he will get blood. We don't really care for the oncology team here. They just make us feel like they really don't care. I'll be glad when James is back under doctor Li's care. James' walking keeps improving everyday. He really doesn't need much help walking now. His balance is still a little shaky but I'm sure it will get better. He still plays all the time. When he's not doing treatment you will find him downstairs in the playroom. He's probably in there a good 2-3 hours a day. I keep thinking well he's playing so much that he's bound to get tired and go to bed quickly but he doesn't. This is my last full week with him, Zoey and I go home next Wednesday. It's very hard for me to leave him since I've been with him everyday since this whole thing started. I just hope Sam can remember everything I tell him. We are so grateful for all the love and prayers that have been given.

5 out of 30

Well James has finished his 5th day of radiation, only 25 left. We had our weekly visit with Dr. Grosshans today and he said everything is going good. James had MRI scans a couple weeks ago and they looked good. No cancer cells still. I guess the doctor was a little worried because James hasn't had treatment in 3 months so he thought something might have grown back in that time. Thankfully James is still cancer free. He has lost a few pounds since doing radiation but I think it's mostly because he has to fast from midnight till about 2:30 in the afternoon. He eats quite a bit on his own though so hopefully we can get his weight back up a bit. They said his ears and forehead will start to get red and look like a sun burn. Also he will be getting a stronger dose of radiation to his spine where the tumor cells slugged down. He is still playing and having a good time. He's kind of getting tired of being here and ready to go home. Only one more month poor guy. He loves playing with his sister and being "the boss" of her. We hope he continues to do well and are so grateful that he still has no cancer cells. I hope and pray everyday that it will stay that way.