Results

Well James had all his follow up scans this week and yesterday we found out the results. All scans show NO cancer cells anywhere! I did ask them about his spine because they have always questioned if it was scar tissue or tumor. The doctor said it's just scar tissue from where the tumor used to be. We were so happy to hear that James has no cancer. They can't officially say he's cancer free until it's been 5 years. They also said that we won't be doing any radiation right now. They still kind of feel that James is too young so for now he's done with treatment. Now I just have to not think about the "what if" and be grateful for the time I get with this boy. I just want my sweet boy to live a long healthy happy life. They also said once he gets off the TPN we can talk about what to do about his broviac. I told them I would be ok if they wanted to switch it to a port but the doctors are thinking of maybe just getting rid of it altogether. Which is good but then any time he has to go in they would have to poke him. The broviac is just very sensitive and high risk for infection if not taken care of properly. His poor skin just tears when you pull the tape off that covers it. We will see. For now he will continue to go to clinic twice a week and does therapy three times a week. Also they talked to me about banking my baby's cord blood. They said if James ever has to do a transplant again and this baby is a match we can use the cord blood for James. I hadn't thought of that before and I'm pretty sure we are going to do it. I'd rather be prepared then later regret I didn't do it. James is still happy and having fun. It's been quite a challenge to get him to eat just one bite of his food but he's getting better. He's very excited for Easter. This morning he asked if the Easter bunny came yet and I had to tell him just one more day. He loves looking for the eggs. Any holiday that involves candy he loves! I'm so grateful for all the love and prayers we've gotten. I know our journey with this isn't finished but we are just happy to be a family.