Tuesday, April 29, 2014

No more!

James is still doing a great job. We took him to clinic yesterday and all his counts are good. They decided he is done with TPN! They raised his tube feed to 45 ml. We are so happy he is done with that stuff. He goes back Thursday and if he's still doing well it will go up to 50. He is having surgery on May 14th to get his broviac switched to a port. We were referred to an opthomalogist to check out James' eye and see if there is anything that can be done. Hopefully we can meet with that doctor soon. It doesn't bother him and we know he can still see but I just want to know what the options are for him. As far as other treatment he won't get any until June or later. We won't get to talk to a radiation oncologist for a few more weeks to ask questions and see what they are planning. We haven't decided if we want to do radiation yet and we aren't going to worry about it till June. Dr. Li did tell us a tiny bit yesterday about it but not much. Right now everyone is just enjoying there time together. James has been doing really well. He tries to "cruise" around all the furniture. When he's not hooked up to his feed he definitely sees how much he can do. We love having him home.

No comments:

Post a Comment