It's crazy to think that a year ago yesterday this whole thing started. James had gotten sick and we were out of town at a wedding. When we got home and took him to a doctor they had told us it was just a bad flu. Fast forward to today the flu is still here. It's crazy that a year ago he weighed 25 pounds and was loosing weight fast. Now he weighs 37.2 pounds and gaining great. It's crazy how much can happen in one year.
Today we took James to the clinic and everyone at Cardon's was so excited to have James back. Dr. Li couldn't believe all the improvement in James. James' blood counts look great! They told us we could increase his feed to 15ml and on Thursday when we go back if he's still good we will start to taper off the TPN. The orders have been sent for his MRI and PET scan so as soon as they call me to schedule it we can get it done. Dr. Li doesn't think James will need to do radiation therapy but they will keep it in mind. If he does need radiation it won't be for at least 6 months so that James can completely heal. I am so proud of my boy. He is doing so great and loves being home. Now when we go to clinic he always tells us "I'm just visiting!" He is very anxious to go out and do everything. He has 8 months to make up for, so he wants to see everything. He is very excited about his new sibling but says it's not a boy it's a girl. Let's just hope he's ok either way. We are all still trying to get used to our new normal.
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