Last visit to PCH

Today was James' last visit to the Phoenix Children's Hospital clinic. We met with Dr. Adams and she thinks James looks good. We started his NG feed on Saturday afternoon and he has done really well. He has only thrown up once since then which is great. She told me I could raise it up a little going from 5ml per hour to 10. The goal is 50ml per hour. He does have diarrhea now though so they didn't want to take him off TPN just yet in case we have to turn the feeds off. He will get to go see Dr. Li on Monday and we are so excited. He had to get a neupogen shot because his ANC had dropped from Friday. We also talked to Dr. Adams about the next steps for James. He pretty much has to get a complete work up again. He needs an MRI, PET scan, hearing test, eye exam, and a test to see where he is developmentally. She also said depending on what the scans look like he might have to do radiation. She said they won't know that until after the scans and they all sit down and discuss it. Honestly I wasn't excited that he might have to do more treatment but we have always known that it is a possibility. He has just been through so much I don't want him to go through anymore. She did say though if he does have to do radiation it won't happen for a while. For now they want him to rest and recover. I'm excited for him to get to be home now for a while. Hopefully everything will go well for him.