Saturday, March 8, 2014
Fevers and a bad liver
Friday morning about 2:30am James got a fever. He's had 3 more since then. They took some blood cultures to see if he had any kind of infection but everything came back normal and is still normal. This morning his eyes were slightly yellow and his liver level went up which isn't good. They did an ultrasound on his liver to just see what was going on since he has a history of liver damage. The ultrasound came back normal, his liver looks good. So they aren't sure why he's getting fevers. Now they will watch his liver very closely we don't want him to get VOD again because that was a nightmare. The doctor said as long as they catch it when it first happens they won't have to put a drain in his tummy again. I guess they can just give him some medicine and cut back on the TPN a little. He tells us a lot that he doesn't feel good. It breaks my heart every time because there is nothing I can do except hold him and tell him I love him. I know they say it gets worse before it gets better. I'm hoping this is the worst of it but knowing James' luck it's probably not. He's already making all kinds of plans for when he's done. He wants to go to the dinosaur land(natural history museum) and the aquarium. He also wants a vanilla cake with red frosting, haha. I think it's funny how specific he is. He will play for a little bit but gets pretty tired quickly. His naps have become very long. He sleeps from about 11 to 4. Hopefully he can get past the fevers and his liver won't get worse.
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