We had a meeting on Friday with all of James' doctors, therapy specialists, and case workers. We just kinda went over where James was in July and where he is now. Then they told us what the plan for him is.
James is going to be getting a PET scan on his brain this week because they want to make sure the tumor is actually gone. If it comes back negative they will do surgery and get a biopsy of it. Which would make that James' 5th surgery in 4 months. Then he will be sent to Phoenix Children's hospital and do 3 rounds of high dose chemo with a stem cell transplant. If the scan is positive James will have two more rounds of chemo at Cardon's.
I was a little bummed because Dr. Adams had told us that he would only do the high dose chemo once when we went and saw her. When we had our meeting I kept asking if they were sure it was going to be three times, and they said yes. A part of me is still hoping that when we go over to PCH Dr. Adams will say no it's just once. If he does three rounds he will be in the hospital till February at least.
James gets to come home tomorrow! I'm so excited. His liver is still weak so while it heals up he gets to stay home with us. We are so excited to have everyone under one roof for a little while. James is doing really well, he has tried to eat a little bit of real food but his tummy isn't used to it so he throws up. Hopefully we can get his tummy back to normal.
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