Adjusting

We have had a busy week, sorry I have not updated. James got to come home finally! Monday evening they released him. It has been quite the adjustment. It's kinda like having a newborn that's 3. He wakes up in the middle of the night crying. You can't leave him unattended on the couch or he tries to move and falls off! Tuesday he had his PET scan and everything came back negative. Wednesday he went into the clinic and had to get some platelets. It took almost all morning long. Thursday he had another MRI done and then Friday he was supposed to get a biopsy done but it was canceled because the MRI scan was not the right one. So now he will have another MRI this week and do the biopsy if they get it right. Today we went into physical therapy. James had a fun time and is getting really strong. Our goals are to try to get him to where he can sit up by himself and maybe try to crawl. He will be going into clinic again this afternoon. He will probably need more platelets because they want to keep them above 50,000 and his are usually 30,000-40,000. So after they get the biopsy then we will find out if he is going to PCH and what the plan is.  We have loved having James home for a week. We know it won't last forever but we are just grateful for any time they give us with him.