Start day

Today was such a long day for us. James started his Proton Radiation treatment and it was a little confusing. Hopefully we will get the hang of this. James' appointment was set for 12:30 and they ask you to be their 30 minutes a head of schedule. Well after about 30 minutes after his scheduled appointment time they came and told me that they were running 40 minutes behind so he didn't actually get in the room till 1:40. James also has to be sedated every time he has treatment because he has to stay perfectly still. Which means he cannot eat or drink 8 hours before, so pretty much no breakfast and today no lunch for him. I felt so bad because he was so hungry and it didn't help that they were so far behind today. Usually they said this does not happen but this morning there was a big thunderstorm and it messed up the machine or something so that put everything off. According to the nurse they don't get behind because a lot of there patients in the morning are little kids who are fasting so if you come late they move you to the end and take the next person. Anyway 2 hours later we finally got to go back to the "hotel" or the Ronald McDonald House. We received his schedule for all his treatment and they are all at about noon. It stinks for him cause he can't eat but because he has so much to radiate they have to change things on the machine so he's last of the kids. He was super upset also when he woke up. It took him a good hour to stop screaming and thrashing around. Hopefully it's not like that every time. Other than that he has been enjoying playing in the playroom and relaxing. We took the kids to the zoo on Saturday and they thought it was pretty cool. James' last day of treatment is August 5th but Zoey and I have to leave in three weeks. So for three weeks our family will be split. I'm not excited to leave my boys behind but I know James is in the right place and will be taken care of.