Thursday, January 9, 2014
Waiting is the worst
James' counts are all up and he hasn't had to have any blood transfusions in a few days. They put the NG tube back in Tuesday and just started him on pedyalite. Then yesterday they put real formula in it. Well he had a rough night he kept throwing up so they turned the feeds off and aren't planning on turning it back on. He's having a hard time even keeping his meds down, but when you haven't eating in almost a month it's probably hard on the stomach. So he might get to go home tomorrow but they aren't sure because he's so sick. He starts chemo again next Thursday. I have to say the worst part of the treatment is waiting. We have like a week and a half where all his counts are up and he's feeling pretty good and we just sit and wait for the next cycle to start. His physical therapist got him this cool walker. He stands in the middle and it supports his back and sides and he can walk around. He doesn't walk far because he gets pretty tired but he does really good. She said even if he does it 5 minutes a day it will help strengthen his legs. His body is peeling pretty bad from the chemical burn and he finally lost all his hair. The last chemo he did just thinned it out real good but he didn't lose it. He asks for Zoey everyday but we FaceTime with her about every night so he can see her.
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