I thought I would just summarize what all has happened with James so far.
James has been sick since the beginning of April. He had lost 5lbs since then. No one could figure out what was wrong with him. His pediatrician checked for diabetes and that came back negative. Then they put him on pediasure for a few weeks but he still was throwing up and not gaining weight. She then sent us to a GI specialist. The GI specialist had him get an endoscopy and an upper GI done, both came back normal. They put him on reflux medication and appetite stimulants but nothing seemed to help.
After 3 months of him being sick and no one knowing what was wrong they admitted him to the hospital to put a NG tube(feeding tube) in him to try to get him to gain weight. They also did a head MRI and that is when they found two tumors in his brain. One in the fourth ventricle and one in the third. The plan was to take him into surgery two days later to remove one tumor. They also found tumor that has slugged down to the base of his spine. They removed the tumor in his fourth ventricle but the one in the third cannot be removed because its too central and is wrapped around all his nerves. They also put a drain in his brain to get rid of the spinal fluid build up. .
A week later they removed the drain and put a broviac line on the left side of his chest where they will administer his chemotherapy medication. The next morning he was not responsive and his eyes looked horrible. He had thrown up a little blood so they rushed him to surgery and put a shunt in his brain.
They had to scrap tumor out more on one side than the other. Because of that James has weakness on his right side. He has a hard time talking and moving. He can't sit up or stand by himself. He will have a long road of therapy.
We were told he had Medulloblastoma Brain Cancer and sat down with the Oncology team and figured out a plan. He will have 3 cycles of chemotherapy. One cycle is 21 days and chemotherapy last one week. After the third cycle he will get another MRI to see if it helped. He could possibly have two more cycles after. At the end he will have high dose chemotherapy and stem cell transplant.
We are praying for James and for your family. Love you guys!
ReplyDeleteThanks for the updates on James. It is still incomprehensible that he is going through this, and you and Sam have been so brave. I will continue to pray for all of you and to put his name on the prayer rolls in the temple.
ReplyDeleteHi my name is Brianna Hawke and I am Ben and Brittany Teare's neighbor. Brittany told me about your sweet son today and I wanted to reach out and say hello. Your son is in my prayers and hope and pray he will get well soon. I am so sorry that you and your family are going through this extremely difficult time. My husband was diagnosed with a Medulloblastoma brain tumor when he was seven years old. He was able to get surgery, radiation, and then chemo. He was able to go into remission for twenty years. Eight months ago he was again diagnosed with a Medulloblatoma/Glioma mix brain tumor. We are going through all of the emotions together right now. I write about our journey on my blog: http://makingmemoriesofus2012.blogspot.com/
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